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Epilepsy - Management
What information resources should I ensure people with epilepsy and their carers know about?

Basis for recommendation
  • The recommendation to ensure that people with epilepsy and their carers have a named primary healthcare professional to contact for help is based on expert opinion [NICE, 2004c].
  • The recommendation to ensure that people are aware of sources of information about epilepsy and its treatment is based on evidence, considered by the National Institute for Health and Clinical Excellence, which found that people are often given inadequate information about epilepsy and its treatment [NICE, 2004c].
    • A systematic review identified 40 primary research papers published between 1990 and 2000 [Couldridge et al, 2001]. It found that individuals require more information on epilepsy in general, diagnosis, treatment options, medications and their adverse effects, seizures and seizure control, prognosis, injury prevention, psychological issues, social security, driving and insurance, employment, lifestyle, and social issues.

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