• Urgently refer all people suspected of having a first epileptic seizure to a specialist with training and expertise in epilepsy, to establish the diagnosis. Ensure:
• They are seen within 14 days of referral.
• The referral letter includes a detailed description of the seizure from a first-hand witness (if available), with contact details of the witness.
• Advise the family or carers of the person with suspected epilepsy:
• How to recognize and manage a seizure.
• To record further episodes of possible seizures. This can be done using video (which may be available on a mobile phone) or in a diary.
• Advise the person with suspected epilepsy:
• To stop driving while waiting to see the specialist, and to avoid potentially dangerous work or leisure activities. In particular, they should avoid swimming, and ensure bathing is undertaken with supervision to avoid the risk of drowning.
• To take a witness of the seizure to the first hospital appointment if possible.
• To contact their GP if further episodes occur while they are waiting to see the specialist. The GP should seek specialist advice if they are concerned about the person having recurrent episodes of suspected seizures.
• Inform the person about:
• What happens during an epileptic seizure.
• What to expect when they see the specialist.
• Provide written information to support verbal advice.

In depth